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Life After Lung Transplant – What to Expect?

Life After Lung Transplant – What to Expect?

It is always a new precious life that is received after transplantation in many aspects and many patients believe I can have normal previous life. Although it is new life and many of them might be feeling far better in terms of their symptoms and without the need of continuous oxygen and frequent hospitalisation.
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However it has few other burning issues which many patients do not know or keep forgetting once they are discharged from the hospital, which is as follows:
Lifelong medication
Life long follow up?
Strict Lung rehabilitation program
To avoid Infections and rejection of Lungs
Move more and stay less idle
Should I avoid Smoking and alcohol after transplant?
Can I have children?
When should I consult my transplant Pulmonologist other than the regular check up?
(1) Lifelong medication
After your transplant, you will have to take several medicines for life.
Always take your medication at the same time
Do not skip any dose of the immunosuppressive medication as it protects ur new lungs from rejection which can affect the function of new lungs
There are some medications that can affect your renal function hence it is advisable to drink more water every day to keep healthy and DO NOT DEHYDRATE
As few medications can cause gastric side effects , your transplant Pulmonologist can give the necessary supportive medications to improve your symptoms hence make sure that you take the medications at the right time
Never take extra medication on your own initiative, not even on the prescription of your GP and please contact ur transplant centre for further details
(2) Do I need a life long follow up?
Yes. After your transplant, you will be closely monitored for life in the outpatient OPD . In the beginning 2 times a week, then once a week and so we build up to a check-up every 3 to 4 months to make sure that lung function is good and body is able to combat infections.
(3) Lung rehabilitation program
To make the most of your new lungs in your daily life, it is important to follow a rehabilitation program. Exercise program tailored to you with mainly cycling and walking, supplemented with specific exercises with personal guidance for upto 6 months.

Research shows that the Rehabilitation program and physical activity leads to an improved quality of life and increased exercise capacity.

(4) To avoid Rejection and Infection of lungs
Feeling good after a transplant depends on many factors like infection , rejection, adherence to therapy, a healthy and varied diet, exercise and knowing when to seek appropriate and professional care. There are two important phenomenon which can drastically lower the function of new lungs which is as follows:
(i) REJECTION

The medication you take after your transplant affects certain parts of your immune system, so the normal immune process won't attack your newly transplanted organ. However, it is not uncommon for your immune system to recognize and attack the transplanted organ. This is what we call 'rejection'.

(ii) RECURRENT INFECTIONS

The immunosuppressive medication that you take reduces the resistance. This makes you more susceptible to getting infections, especially during the first 3 to 6 months after your transplant. Some tips to avoid infections:

wash your hands
avoid sick people
avoid large groups of people
take enough rest
avoid contact with pets
recognize the early symptoms of infection
take your medication that prevents infections
(5) Move more and stay less idle !!
You should aim to be active for an extra 30 minutes each day. This could be: walking, cycling, light housework, gardening... The best way to meet this standard is not just to play sports, but to integrate these physical activities into your daily life.
(6) Should I avoid smoking and alcohol after Lung transplant?
Once they start feeling well after transplant many of them start smoking without knowing it side effects. Smoking again is harmful to health and significantly increases the risk of cardiovascular disease and rejection.

Excessive use of alcohol is also prohibited as it can damage the liver and interfere with the action of some medications you are taking. Drinking alcohol on a daily basis is therefore prohibited.

(7) Can I have children after Lung transplant ?
Sexual problems after a lung transplant are not uncommon. It concerns impotence in the man and the absence of menstruation and infertility in the woman.

Most men regain their potency a few weeks after the transplant. A few weeks after the transplant, most women also return to their normal menstrual cycles and it is therefore possible to become pregnant. However, pregnancy after the transplant is strongly discouraged because of the possible consequences for the baby and the mother.

If you are sexually active, the use of contraception (condom, IUD, the pill) is strongly recommended to prevent pregnancy. In addition to preventing pregnancy, using a condom reduces the risk of sexually transmitted diseases.

Immunosuppressive medications can affect how oral contraceptives work. It is therefore best to discuss which contraception is most suitable with the transplant doctor and/or your gynaecologist.

(8) Vaccination
Get vaccinated to boost your immunity and prevent the recurrent infections.
Annually against the flu
5-yearly against pneumococci
10-yearly against tetanus
(9) When should I consult my transplant Pulmonologist other than the regular check up?
In order to detect rejection and infections in time, it is important to do a few tests regularly (1 to 2 times a day).
Always measure your temperature at the same time (for example, morning and evening) and at the same body location, and record the value in your diary every day.
Measure your lung function (spirometry) twice a day and also record these values in your diary.
Do you suffer from the following symptoms?
shortness of breath
wheezing or an increasing and persistent cough
fever (> 38°C)
more prone to phlegm that has changed color (from clear/white phlegm to green, yellowish, brown, tough phlegm)
if your home lung function (FEV1) has decreased by more than 10 percent from your normal values in 2 to 3 days
unusual tiredness
If you suffer from any of the above symptoms kindly consult your transplant Pulmonologist to discuss regarding the further treatment.